If you or a loved one are affected by EEC syndrome, understanding its impact on vision is crucial. This blog shares one individual’s journey with limbal stem cell deficiency, the challenges of treatment, and a procedure that is helping his sight. Discover valuable insights, hope and the latest advancements.
3 Ways to Support Better Mental Health in the New Year
This blog offers a fresh take on building sustainable habits for better mental, physical, and spiritual wellness. Discover tips on mindful social media use, creative ways to stay active, and how to build meaningful connections—especially within the NFED community. Read more now!
How to Keep the Fa-La-La Around Family This Holiday Season
The holidays can be both joyful and overwhelming, especially when managing the challenges of a rare disorder, like ectodermal dysplasia. Beth Orchard shares heartfelt insights, practical self-care tips, and strategies for thriving during this busy season. Learn how to balance responsibilities, find peace, and embrace the true spirit of the holidays.
How Clouston Syndrome Has Impacted Three Women’s Fingernails and Life
Clouston syndrome can cause significant nail abnormalities which can be a source of physical and emotional pain for many women. Read their stories for how they cope. Plus, download our new library article written by dermatologists on how to best treat the nails.
How to Prepare for and Live Your Best Sweat-Free Life
Marathon runner Adam Viccaro shares his four rules for overcoming challenges – like not sweating – to accomplish more than you ever thought possible.
15 Ways to Help Your Child Get Ready for Dental Visits and Dentures
How do you help your little ones affected by ectodermal dysplasia prepare for all of the dentist visits they need? What can you do to explain and show them what getting dentures is going to be like? Check out our resources and suggestions for how to make your child’s experience at the dentist be a positive one.
How to Choose Safer Products for Your Sensitive Skin
Do you have sensitive skin? Find out what products are safer for you to use. Plus, find out the best way to test them.
A Wig Sister is Living Her Best Hair Life
Jessica Reece has always had super thin, fragile and unmanageable hair due to EEC syndrome. Find out how trying a wig has changed her life. Plus, learn Jessica’s best tips for purchasing, choosing, caring for and styling a wig.