Row in Rhythm: Our Global Ectodermal Dysplasias Community 

What happens when 15 nations gather to share their stories of ectodermal dysplasia? In Copenhagen, NFED leadership found family, courage, and a surprising Viking ship lesson in rowing together. Meet the inspiring voices who gathered for the Ectodermal Dysplasias International Network Conference and how we are shaping the global ectodermal dysplasia community. Discover why none of us is ever truly rowing alone!

Collaborating With Leaders Around the World

In early October, NFED Executive Director Mary Fete met with leaders from eight other ectodermal dysplasia support groups/organizations in Germany. Find out what they talked about and what they have planned for 2-20-20!