Are you heading to Falls Church, Virginia, this summer to attend the National Foundation for Ectodermal Dysplasias Family Conference? Our veteran attendees have some great tips for you. Some of the best knowledge you gain is from the interaction with other families. Ask,ask,ask…anything! Write down all your questions so you don’t forget. Everyone is there…
Expanding Our Volunteer Team in 2017
Service and giving are qualities that are greatly cherished by all of us at the NFED. You, as a volunteer, help our organization by lending a kind helping hand – and our only payment to you are wages of love, gratitude and knowing that you are making a significant impact on lives. Everyone has such busy…
Things to do in the hotel during Conference
Curious about what you can do during your spare time at the Family Conference. They offer: Business center. Need to work for a few hours while at the conference. Here is what the business center has to offer: Audio/Visual Equipment Rental Complimentary Printing Service Fax Meeting Rooms Photo Copying Service ($0.10) Printer Indoor Pool.Too hot…
Things to do in Chesterfield
Sachs Butterfly House at Faust Park (6 minutes from hotel): More than a thousand live tropical butterflies fly freely in the glass conservatory at the Sophia M. Sachs Butterfly House. Watch a butterfly emerge from a chrysalis right before your eyes. Or go outside and visit native and migrating species in the Butterfly Garden. (*$6 general…
NFED Family Conference: Our Family Reunion
by Rachel Buerman Every year, we pack up the family and journey to the NFED Family Conference. We are not natural born travelers. In fact, when it comes to travel we might just be the next National Lampoons movie cast. Despite our chaotic travel skills, one thing is certain, the NFED Conference is always worth…
FREE Things to do in St. Louis
If you are coming to St Louis before Family Conference or staying after…check out these fun things to do in St Louis. City Garden – Downtown: This outdoor garden includes art, plants and several water features. The water features include a splash pad and two wading pool areas. This is approximately a 25-minute drive from the…
Welcome Home!
By Sue Kluzek I don’t know about you, but I am getting very excited about our NFED Family Conference this summer! It’s an exciting time for all of us. We (the NFED) are celebrating our 35th anniversary. We have new programming and a new format for some of the conference. It’s going to be great!…
15 Reasons to Attend Family Conference
I could list way more than 15 reasons why you join meet us in St. Louis this July. But, this list will get you started. Tour St. Louis: Did you know St. Louis has cheese you can get nowhere else? Refresh and Recharge: Take a few days off from your busy schedule and relax and…