The Kelso and Huxman families met in 2006 at the NFED Family Conference in St. Louis. Both have children affected by EEC syndrome and they found an instant connection with one another. Before that conference had ended, they were finishing each other’s sentences; their children were referring to themselves as “cousins”; and they were making…
A Doc’s Perspective on the NFED Family Reunion (aka Family Conference)
By Alanna F. Bree, M.D., NFED Scientific Advisory Council Attending the NFED Family Conferences are almost like a family reunion for me. Even though I am not related to anyone who attends, the people I have met through the NFED have become like an extended family to me. This includes babies, children & adults affected by…
Finding Money to Help Pay Your Family Conference Expenses
With a little searching and networking you can find money to help you attend a National Family Conference. Many families have been successful in obtaining funding from the sources below. It takes internet searches, phone calls and persistence. Call and ask about conference funding for families with special needs. If you hit a roadblock, ask…