Meet Eliza, Finley and Emmeline and learn about their first year of life. Each are affected by Goltz syndrome but in different ways. Their stories will help parents expecting or who have a newborn with this condition navigate the unknowns of this complex syndrome. Plus, download NFED’s comprehensive new resource: A Guide to the First Year of Life: Goltz Syndrome / Focal Dermal Hypoplasia.
To Know Katherine is To Know Joy
Jodi Watts’ days as a stay-at-home mom with a baby with Goltz syndrome were filled with appointments to attend to Katherine’s many needs. The fiesty little toddler faces many challenges but continues to thrive. Find out what her parents have learned, the life-changing conference they attended, and the dreams they have for Katherine.
Learning More About Papillomas and Goltz Syndrome
Ten-year-old Maximus Sessions just wants the papillomas on his fingers, toes and knees to go away. They feel bumpy, can be itchy and sometimes they break open and bleed. They are at the top of the list of things he doesn’t like about being affected by Goltz syndrome. Read our new article to learn what papillomas are and how to treat them.