Meet Lily, a brave seven-year-old who made new friends, colored a stuffed bear, and helped researchers at the NFED’s Wound Healing Conference. Find out how families like hers shaped new treatment guidelines, started a skin sample biobank, and showed what it looks like when science and community join hands.
Conference Advances Research and Treatment for Incontinentia Pigmenti
At the NFED, we recognize the urgent need for more research on rare conditions like incontinentia pigmenti (IP), which has received limited focus in the scientific community. We collaborated with Oregon Health Sciences University to host the NFED Incontinentia Pigmenti Conference: Translating Discovery to Therapy, which brought together researchers, doctors, and families to advance IP care.
Experiencing the Magic of Ectodermal Dysplasias Research Collaboration
Bringing people together is what the National Foundation for Ectodermal Dysplasias does best—especially when advancing research. This is more than science; it’s about saving lives. Read what happened at our recent Complex Wound Healing Conference in Philadelphia.