A Tribute to our Scientific Advisory Council

Every once in a while it is important to sit back and reflect on how blessed we are to have such wonderful professional commitment to our organization and the families we serve.  The Scientific Advisory Council (SAC) and Patient Care Council (PCC) are two examples of professional dedication to the NFED.  The PCC focus is…

BE HEARD. INSPIRE OTHERS. BE YOURSELF.

Wow! Can you believe it is February already?  We all know what happens in February – Valentine’s Day, Ground Hog Day, the Super Bowl. But more importantly, it is Ectodermal Dysplasias Awareness Month, #EDAM2016.  This month, we are striving to raise the positive awareness of this condition which affects an estimated 2 in 10,000 births….

Happy Holidays!

It is hard to believe we are just a few weeks away from starting a new year. Whew! The time certainly flies. When I look over 2015, I think of all of the wonderful things that occurred in this year and I am thankful for all of our blessings.   You helped us accomplish all of…

Geismar Family Gives Back with Annual Halloween Bash

By Alice Geismar Seventeen years ago this November, my husband, Bruce and I were awaiting the birth of our second grandchild. Our first grandson, Jack was almost two and we were enlisted to watch him while Ruth and Keith went to the hospital. It was immediately apparent that Ryan had serious problems. He looked like…