Seth Ferris lives in Brooklyn, NY and is an avid volunteer. He not only volunteers for the National Foundation for Ectodermal Dysplasias (NFED) but also for the local soup kitchen, American Red Cross, and the Ambulance Corp. However, his primary focus and passion belongs to the NFED. Seth has been involved with the NFED for…
We Appreciate You
On behalf of the NFED, I would like to convey our warmest gratitude for all the wonderful things you have done for us over the past year. Big things and small things, they all mean a lot to us. Your generous donation of your time and expertise helps us accomplish our mission every day. Since…
Freshman Entrepreneur Raises Money to Honor Sister
Avani Deshpande is not your typical ninth grader. She’s a compassionate entrepreneur who is raising awareness and funds for ectodermal dysplasias in honor of her sister. Avani’s passion for volunteering arose from watching her younger sister Matali live with ectodermal dysplasias. She wanted to make a difference by raising funds and awareness for the National…
Volunteer Spotlight: Our Folders, Stuffers and Filers Oh My
When we asked some of our office volunteers why they volunteer for us, they mentioned an array of reasons from making a difference, helping others and learning new things. We welcome their assistance more than they ever know. Their help has been especially valuable during some of our hectic seasons, like the Family Conference, fundraising…
2016: Our Year in Review
When I look back over 2016, it brings a smile to my face when I see what we, the National Foundation for Ectodermal Dysplasias (NFED) family, have accomplished. We have truly been blessed with a wonderful year. You helped us accomplish many goals. We are truly grateful that each of you are a part of our family.
Volunteers Give Forty Years of Board Service
This month, we thank four volunteers for their years of service and dedication to our Board of Directors (BOD). Three of them have served 10 or more years. They helped lead the National Foundation for Ectodermal Dysplasias (NFED) through the transition after our founder, Mary K. Richter, retired in 2010. Serving on a Board requires…
Get Baking With Cookies for a Cure
Love cookies? (Who doesn’t?) Want to support the National Foundation for Ectodermal Dysplasias (NFED) and spread awareness for ectodermal dysplasias? We have the perfect fundraising opportunity for you — cookies for a cure.
Expanding Our Volunteer Team in 2017
Service and giving are qualities that are greatly cherished by all of us at the NFED. You, as a volunteer, help our organization by lending a kind helping hand – and our only payment to you are wages of love, gratitude and knowing that you are making a significant impact on lives. Everyone has such busy…