Families and advocates, your persistent work is paying off, and we are moving the Ensuring Lasting Smiles Act (S.560/H.R.1379) forward!
The Ensuring Lasting Smiles Act (ELSA) is one of seven different bills included in a legislative hearing conducted by the Energy and Commerce’s Subcommittee on Health in the House of Representatives on Wednesday, January 8 at 10 a.m. EST.
Titled, “Legislation to Improve Americans’ Health Care Coverage and Outcomes,” this hearing is one of the important steps needed to move ELSA through committee.
Kevin Koser, co-chair of the National Foundation for Ectodermal Dysplasias Family-Driven Advocacy Committee, will testify on behalf of families living with congenital anomalies and share his son, Kannon’s story. Kevin will be allowed five-minutes to share his oral testimony.
Then, members of the committee will have time to ask him questions. Several other members of our Family-Driven Advocacy Committee will also attend.
You should be able to watch Kevin’s testimony as the hearing will be livestreamed.
How You Can Help
This is a critical time to garner support and move ELSA further through Congress. We are calling on all advocates to contact your legislators with the following requests:
- If your legislators have not yet co-sponsored, email/call them and ask them to co-sponsor the Ensuring Lasting Smiles Act (H.R.1379/S.560).
- If your legislators have co-sponsored ELSA, please email/call them and ask them for their help to move the bill forward through Congress.
With your help, we can continue to move ELSA forward through Congress. Let’s keep this momentum going and get this bill passed by the end of 2020!
Stay in the Know
We encourage you to register as an advocate and join the Ensuring Lasting Smiles Act Advocates Facebook Group to receive the most up-to-date information on ELSA’s progress.