Maximus’ Story with Goltz Syndrome

After a normal pregnancy, Brandi and Corey knew right away that something was wrong when their son, Maximus was born.  He had a wound on the top of his head, fused fingers and a missing toe. The nurses were hesitant to wipe off the newborn in fear his skin may slough up.

In this interview, Brandi and Corey talk about Maximus’ diagnosis of Goltz syndrome, his time in the NICU, and his numerous physical challenges. They discuss the relief and comfort they found in connecting with other Goltz families and the National Foundation for Ectodermal Dysplasias.  Listen as they explain why they gave him a strong name and their dreams for Maximus.

Your support helps us advance our mission. We invite you to visit our “How We Help” page so you can see how your donation impacts and improves the lives of those affected by ectodermal dysplasias. We also would be so grateful if you shared this invitation to give with others. You can find resources on how to do that on our landing page: www.nfed.org/appeal2024. You can also simply share the link or posts from our social media. Indeed- together we can do more.