By Craig and Julie Claeys Our son is affected by HED and is now 17 yrs. old. We have been attending Family Conferences since 1996 and have not missed but a few. Since our first conference in 1996, we found attending was so beneficial for our son and us as parents to be able to…
Register Early For A Chance to Win Disney Tickets
If you are planning to come to our National Family Conference in Orlando, be sure to register by May 25th. Early birds will have their name entered into a drawing for three cool prizes! 1st prize – Four evening tickets to Walt Disney World on Saturday, July 21st 2nd prize – Two nights’ lodging at the Buena Vista…
Hypohydrosis: How To Stay Cool When You Can’t Sweat
If you can’t sweat, how do you stay cool? Should you move to a cooler climate? Should you buy a cool vest? What cooling technique works best? We answer these questions and more in this document all about being cool.
Orlando is a Great Family Destination
Orlando is a great family destination so plan your vacation to coincide with the NFED Family Conference. Many of you may be concerned about the heat and the humidty in Florida but all conference activities at the Buena Vista Palace and Spa are held indoors in climate controlled rooms. The only outdoor activity is an…
Medicare and other benefits: Who pays 1st?
Medicare and other benefits: Who pays first? Managing multiple systems of benefits is complex. This information and guide will help you. https://ow.ly/ajg2y
Finding Money to Help Pay Your Family Conference Expenses
With a little searching and networking you can find money to help you attend a National Family Conference. Many families have been successful in obtaining funding from the sources below. It takes internet searches, phone calls and persistence. Call and ask about conference funding for families with special needs. If you hit a roadblock, ask…
Meet Caitlin Sarubbi, Our Family Conference Motivational Speaker
Hello! My name is Caitlin Sarubbi, and I was born with ablepharon macrostomia. This syndrome left me legally blind, partially hearing impaired and have undergone over sixty-two reconstructive surgeries to date. However, 22 years later, I am an undergraduate at Harvard University, studying social and cognitive neuroscience, and a Paralympic ski racer, who competed in…
Family Conference Scholarships Available
Family Conference Scholarships Available Application Deadline: April 13, 2012 We know that attending the National Family Conference can be expensive. That’s why we offer scholarships for qualifying families who need financial assistance to attend the National Family Conference in Orlando, Florida this summer. These scholarships can include waived registration fees and/or hotel stay reimbursement. Preference…