The Ensuring Lasting Smiles Act has new leadership in the U.S. House of Representatives! Find out who they are and how you can take immediate action that would make a lasting impact.
How I Diagnosed Myself With a Rare Disorder
Erica Green is a young woman who spent her life without a name or explanation as to why her teeth were missing and different. Because she presented “normally,” no doctor or dentist ever had answers or a name. Then, she broke her denture and sent her on a journey to self-diagnosis.
How to Help Dry Mouth in Ectodermal Dysplasia
Hoarse voice? Difficulty swallowing? Dry mouth may be cause your issue. Learn about how ectodermal dysplasia can affect your salivary glands and what you can do to manage it.
It’s Time to Rise Up for Rare!
You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.
Celebrate Kelley’s 20th NFED Anniversary!
Helping families with ectodermal dysplasias is her passion! Learn more about this staffer, the lives she’s touched and the many roles she’s played at the Foundation.
How You Can Volunteer in a Pandemic
Despite the crazy year of quarantine that 2020 was, numerous NFED volunteers still found ways to raise money and awareness for the NFED mission. Find out how you can get creative and get involved!
2020: A Year to Remember, Celebrate & Hope
2020 was a year full of challenges, but the NFED excelled in many ways. We brought hope into reality.
COVID-19 Vaccination and Ectodermal Dysplasias
Should you get the COVID-19 vaccination if you have ectodermal dysplasia? We’ll share with you our thoughts as well as those from the National Organization for Rare Disorders.