A Canadian mother trusted her instincts and had her son genetically tested when he didn’t develop all of his teeth. Their journey led to a diagnosis of odontoonychodermal dysplasia, a rare type of ectodermal dysplasia. It also explained symptoms for other family members. Read what Jamie Critchell is determined she must do now.
It Takes A Village
By Karina Luna I am the proud parent of a child with hypohidrotic ectodermal dysplasia. When my son, Liam, 4, was first diagnosed, I was completely blindsided. His father, Leonardo, and I had never heard of this rare condition, nor did we know how unique his upbringing would be because of it. Upon finding the…
Can you believe it’s already the end of the year?
The National Foundation for Ectodermal Dysplasias (NFED) has had a breakthrough year from launching Advocacy Day to funding research projects that are on the brink of life-changing treatments and cures. We cannot do this without our donors and volunteers. Thanks to all of you who give your hard-earned money and time to the NFED! The…
Why One Dentist Loves to Help NFED Families
Dr. Jon Korostoff is an unsung hero of the National Foundation for Ectodermal Dysplasias (NFED) family. His humble approach to dental care can be misleading because he is truly changing the lives of his ectodermal dysplasias patients.
Top 10 Syndromes that Affect NFED Families
Learn which of the 180+ different types of ectodermal dysplasia are the most common among NFED families. Update your profile with the type that affects your family. You and your love ones count!
A Case Study: Dental Implants in a 23-Year-Old With Ectodermal Dysplasia
Dr. Jonathan Korostoff presents a case study of a 23-year-old male with ectodermal dysplasia who was seeking to replace his missing teeth with dental implants. He addresses the number of teeth missing, the treatment plan and the outcomes of the case.
Mr. and Mrs. Weirdo and Goofball
Growing up affected by hypohidrotic ectodermal dysplasia, Everett Hamilton never dreamed he would marry or have kids. Then, Sarah asked him on a first date and all of that changed.
How to Turn Volunteering into a Presidential Service Award
Helping the NFED as a volunteer can add a Presidential Service Award to your resume or college application. We have numerous ways that you could help as a volunteer. Learn how. We offer several toolkits which make volunteering easy.