X-rays showed that he would have no teeth at all on the bottom front, and very few elsewhere. How could that be? Read how the Williams family found a diagnosis and a new family.
Children Don’t Need Teeth?
Kevin Koser doesn’t think he should have to explain to his son with ectodermal dysplasia that he can’t have teeth because health insurance companies don’t feel teeth are necessary. So, he’s taking action and getting others to join him in advocating for the Ensuring Lasting Smiles Act.
Dating and Ectodermal Dysplasias
David Cory talks about the good, the bad and the “What did she just say?!” of dating if you have ectodermal dysplasia. Read about his adventures in dating and what’s he learned about opening yourself to love.
Basile and Stratz Join Board of Directors
Corporate executives Krista Basile and Richard Stratz join the National Foundation for Ectodermal Dysplasias Board of Directors.
Family Building Options
When a genetic condition is diagnosed in an individual or is known to run in the family, there are often questions about implications for passing the condition on to future offspring. Questions can arise about whether any options exist to predict the likelihood that a future child would be affected by the condition, or even whether options exist to decrease or avoid the risk of future child having the condition. Learn about these options.
ELSA Introduced in Congress
The Ensuring Lasting Smiles Act (ELSA) was introduced as a bill in the U.S Senate and House today. This legislation will significantly impact families affected by ectodermal dysplasias and other congenital anomalies. If passed, it will provide health benefits for their complex dental care.
Teen Coder Inspired to Volunteer
A teenager finds the National Foundation for Ectodermal Dysplasias (NFED) online and offers his talents to raise awareness. An expert coder, this bright young man learns the impact one person can have.
How to Advocate for Your Child With Ectodermal Dysplasia at School
If your child is affected by ectodermal dysplasia, your to-do list to school ready for likely has more on it than buying supplies! We pulled together some resources to help you advocate for your child at school.