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Sharing the Excitement of Research

By Maranke Koster, Ph. D. I first became aware of the NFED, and of ectodermal dysplasias, while investigating the role of a gene by the name of p63. The striking similarities between mice lacking a functional p63 gene and individuals affected by ectodermal dysplasias suggested a role for p63 in these disorders. Sure enough, it…

Seeking the Solution to Dry Eyes – Part 2

By Bracee Dudley Read part 1 of Bracee’s story here. After attending a session about PROSE lenses at the 2014 National Family Conference, Bracee and her parents wondered if this was the solution they had been seeking… The benefits of using the BostonSight®  PROSE (prosthetic replacement of the ocular surface ecosystem) contact lens include reduced dry eye symptoms,…

Seeking the Solution to Dry Eyes – Part 1

By Bracee Dudley In my freshman year of high school, I was unfortunate enough to have scratched my right eye and create a corneal ulcer, which is an open sore in the outer layer of the cornea. Thanks to frequent visits to my local ophthalmologist, I obtained antibiotics and was soon able to see semi-comfortably again….

Volunteering for the NFED is My Opportunity to Give Back

By David Sanmiguel The NFED has been a very important part of my family’s life, since the day my daughters were diagnosed. The moment my family and I became members of this great organization we only received good things, along with a warm welcome, understanding, help, information and great times. Simply put, everything has been wonderful. Our…