A while back, we posted the “Save the Date” information for the 11th Annual Halloween Bash, an evening to benefit the National Foundation for Ectodermal Dysplasias in New York City, NY on Thursday October 27th, 2011. Please, check out the complete invitation! Tell your friends about this great fundraising event! How about placing an ad in…
Irving, Texas Man Can’t Sweat, But It’s Cool By Him!
Lee Goggin was featured in an article in the September 5th Dallas Morning News issue. Texas had a brutally hot summer this year. Read how Lee survived the heat. What an inspiring story!
Walk for Ectodermal Dysplasias 8 October 2011
Our good friends of Delta Theta Tau Sority, Inc are hosting a walk to benefit the NFED on October 8th, 2011 in Bethel, MO at 7AM. Registration and waiver due before September 30, 2011. $15 Entry fee includes t-shirt.
Bruno's Golf Outing 10 September 2011!
Bruno’s 16th Golf Outing in Blue Island, IL sponsored by the Swierczeski family, to raise money for the National Foundation for Ectodermal Dysplasias was a huge success. The Swierczewski Family raised more than $11,000 with their golf outing on Saturday 10 Sept. It is all about spreading awareness, being visible & having fun doing so. Enjoy the pictures! Thanks to everyone…
Introducing Judy Blase Woodruff, executive director of the NFED
Please give a big NFED welcome to our new executive director, Judy Blase Woodruff! Many of you got to meet her at the Family Conference. We are excited to have her as the leader of our team. Be sure and email her a note or post a comment here to introduce yourself and say hello….
George Keeble beats Medical Condition! UK Story!
Meet George, an actor who just earned a place at National Youth Theatre in London. Great story from the UK, “When I am performing my condition doesn’t hold me down. I can be anything I want to be and I want to show everyone that.” Read about it here!
Update: Don't Sweat It Golf Classic! 8/17/2011
Don’t Sweat It Golf Classic The Hamm family and their volunteer crew have done it again. Their Don’t Sweat It Golf Classic in Texas this past weekend raised an amazing $40,000 for the NFED! We send out a huge thank you to everyone who helped Paul, Susan and Zach make this a huge success. Please,…
Regional Family Conference in Jackson, MS
We have mailed the registration form of the Regional Family Conference to be held in Jackson, MS at the Jackson Marriott Hotel on Saturday, September 10th, 2011 to all constituents in Mississippi and surroundings states. Most of you should have received this form/flyer with program by now! If not, click on the highlighted link which will take you…