Ten years later, we’re still fighting for ELSA—and it still matters. Soren and Morgan share why families need fair coverage and how advocacy brings hope. Learn what you can do to take action in your home state.
7 Reasons Why Youths Should Advocate for ELSA
Kids and teens have powerful voices and they can help change lives. Learn why speaking up for the Ensuring Lasting Smiles Act matters, how it affects real families, and how young advocates can make a big difference.
Government Shut Down Doesn’t Stop ELSA Advocates
Even a government shutdown couldn’t stop our amazing ELSA advocates! More than 150 people met with lawmakers in Washington, D.C. Find out how NFED families and friends made big progress for the Ensuring Lasting Smiles Act on Capitol Hill! Learn how you can help keep the momentum going to get ELSA passed.
How My Daughter and I Brought ELSA Advocacy Home to Utah
Read how a mom and her daughter from Utah worked hard to share their story and talk with lawmakers about the Ensuring Lasting Smiles Act. Their journey shows how being kind, not giving up, and meeting in person can make a big difference for families like theirs and for ELSA. She walks you through step by step what she did to be successful.
Reunited for a Cause: Former Teacher and Student Advocate for ELSA
When Nishant joined NFED as a new Advocacy State Lead, he never expected to find his former English teacher, Jonathan, leading alongside him. Now, the two are working together to advocate for the Ensuring Lasting Smiles Act and show how powerful community and connection can be.
How a Mom and Daughter Held Their Own Impromptu Day on the Hill
When nine-year-old Keira and her mom, Tara, realized Maryland lawmakers hadn’t signed on to support the Ensuring Lasting Smiles Act (ELSA), they took action. With no meetings scheduled, they hit Capitol Hill, shared Keira’s powerful story, and made a big impact. Read about their bravery and how lawmakers took notice. Plus, find out creative ways you can advocate for ELSA.
ELSA Has Been Reintroduced in the 119th Congress!
All of our advocacy, dedication and background work have finally paid off! We are excited to announce that the Ensuring Lasting Smiles Act (ELSA) was reintroduced on Thursday, May 8th in both chambers of the 119th U.S. Congress. House Bill: H.R.3277 Senate Bill: S.1677 We are extremely thankful for our dedicated bill leads: Senator Tammy…
How You Can Help ReIntroduce ELSA in Congress
Co-chairs of the National Foundation for Ectodermal Dysplasias (NFED) Family Advocacy Committee give an update on the reintroduction of the Ensuring Lasting Smiles Act (ELSA) in Congress.