Love cookies? (Who doesn’t?) Want to support the National Foundation for Ectodermal Dysplasias (NFED) and spread awareness for ectodermal dysplasias? We have the perfect fundraising opportunity for you — cookies for a cure.
Ten Reasons to Give Before December 31st
10. GIVING TO THE NFED IS CONVENIENT You can give online, by calling Brittany at (618) 566-6874, or by sending in a check to: NFED, 6 Executive Drive, Suite 2, Fairview Heights, IL 62208-1360. The most convenient and sustainable donation you can make is by becoming a monthly contributor through our Smile Makers program. Simply…
Expanding Our Volunteer Team in 2017
Service and giving are qualities that are greatly cherished by all of us at the NFED. You, as a volunteer, help our organization by lending a kind helping hand – and our only payment to you are wages of love, gratitude and knowing that you are making a significant impact on lives. Everyone has such busy…
AAD’s Camp Discovery
The American Academy of Dermatology’s (AAD) sponsors a free camp for children ages 8-16 who have a chronic skin disease called Camp Discovery.
Support Ectodermal Dysplasias on Giving Tuesday
Let’s do something good for the NFED community. Be a part of the growing global #GivingTuesday movement. The Bill and Melinda Gates Foundation will match up to $1,000 per each Facebook fundraiser page for the first $500,000
Collaborating With Friends Globally
By Mary Fete Here it is November with the holidays just around the corner. For you, I am sure that it has been a busy fall. It is always so hectic getting the kids back to school and/or working on the end of the year work commitments. Fall is rapidly ending (although the weather in…
NFED.Org Gets Extreme Makeover
By Mare Fete, Executive Director Great news! Our online home at www.NFED.org has had an extreme makeover. We have launched an entirely new website to better serve our ectodermal dysplasias community. It’s our gift to our families, donors, volunteers and care providers in celebration of our 35th anniversary. Families complained about the old site, how…
Why Oliver Is Smiling Even Bigger
Oliver wakes up every morning with the biggest smile in the world even though he has only six teeth. He’s affected by hypohidrotic ectodermal dysplasia. Last Tuesday, Oliver received his dentures and he is thrilled! Now his usual big smile is even bigger. In honor of Oliver, his parents, Matt and Vanessa Nehrkorn, recently held…