Our National Foundation for Ectodermal Dysplasias (NFED) staff has grown by one! Learn more about our new teammate and what impact she hopes to make.
NFED Collaborates with Lab to Make Dentures for Kids
Has your dentist had a hard time finding a dental lab which could make dentures small enough for your child with ectodermal dysplasia? Are you a care provider searching for a dental lab to make small dentures for your pediatric patient? Learn how we can help!
Lea Celebrates 10 Years at the NFED
We recognize Lea Richardson’s 10 years of service to our NFED family. Learn about her dedication and commitment as what her role is at the Foundation.
A Year for the Books
2020 was filled with unprecedented global, health, economic and social challenges. That makes it doubly important that we all pause and look back on some of the great things that we’ve accomplished…with you at our side.
Dental Treatment Centers Added in New York and Georgia
We are excited to share that we have added three new Dental Treatment Centers! Families affected by ectodermal dysplasias now have 22 different centers across the United States to consider for their oral health care. One of these centers is offering free dentures for children under 8.
Twin Voices of the Future for Ectodermal Dysplasias
Life has been full of surprises for the Sanmiguel Bejarano family. They are teaching their daughters how to rally in the face of the unexpected. Alicia and Luna share what they want others to understand about their rare condition. They are becoming the Voices of the Future for ectodermal dysplasias.
We are Determined to Be the VOICES of Change
Together, we are the VOICES of ectodermal dysplasia. We are the many, many faces, races, cultures and ages – and when we bring together all our voices, we can make something remarkable happen! Find out how you can help.
Families Rise Up for International Ectodermal Dysplasias Awareness Day
Sporting blue, families take to social media to celebrate their loved ones affected by ectodermal dysplasia.