We remember with love and gratitude one of our NFED moms and volunteers, Gina Quintanar.
Veronica Minard Joins Staff as Director of Marketing and Communications
Our National Foundation for Ectodermal Dysplasias (NFED) staff has grown by one! Learn more about our new teammate and what impact she hopes to make.
How Hair Made Me Confident
Charlotte Smith knows what it’s like to be a young woman with thin hair. Learn her best hair tips and how having hair has changed her.
Research Shows Effects of COVID-19 with Hypohidrotic Ectodermal Dysplasia
A team of researchers have published findings from the first longitudinal study of COVID-19 and HED. Find out what the risks and what they recommend to prevent them.
Trio of Fall Events Raise Spirits and Funds
We salute families in three states for their incredible events benefitting the NFED.
Now’s the Time to Contact Congress (and Make It Count)
We know that insurance coverage is unfair, but ELSA advocates must contact Congress to tell them. Take a step for smiles and contact your legislators.
A Day in the Life: Living with Hypohidrotic Ectodermal Dysplasia
Meet, Quiel Barrameda, a 35-year-old man from the Philippines who was born with hypohidrotic ectodermal dysplasia (HED). Learn how he stays cool and overcame major challenges with the love and support of his family.
Two-Thirds of the House Support ELSA
The Ensuring Lasting Smiles Act has hit a major milestone in record time! Find out what’s next for the bill and a major obstacle that could prevent it from passing.