More on Splash City Waterpark ! Fun, Fun, Fun!!

Splash City Family Waterpark is Fun for the Whole Family! Splash City is located at 10 Gateway Drive in Collinsville, Illinois. Parking is always free! Just a few housekeeping items worthwhile for you to know ahead of time! Appropriate Attire is Required: Guests MUST wear a lined swimsuit to participate in all water park activities. Revealing…

Update on the Family Conference Hotel 06/17/2011

As per Thursday, June 16th, 2011 The Hilton Garden Inn, our National Family Conference Hotel, no longer has Double Rooms available.  There are plenty of King Size Rooms left.  If you absolutely need a Double Room, we have a couple of different hotel options for you to check out below.  Please, keep in mind that…

AEC and EEC Families: Dr. Colin E. Willoughby, prominent researcher @ our National Family Conference!!

You Have the Opportunity to Share Your Eye Concerns With Researcher By Jack Kriz I am so excited! I mean really, really, excited! Dr. Colin E. Willoughby will  attend this year’s National Family Conference! Who is this doctor? Well, early this year, NFED staffer Mary Fete, shared with me some info about a researcher from Belfast…

Some Practical Information

Hello Everyone!  We just wanted to share some some general housekeeping information with you regarding the 2011 National Family Conference. As you know, the conference is being held at the Hilton Garden Inn St. Louis Shiloh/O’Fallon in O’Fallon, Illinois.  The contact information for the hotel can be found below, along with driving directions from Lambert-St….

Genetic Testing Offer

Males Affected by HED Needed for Research Project at the Family Conference!!! Dear NFED Family, In a research collaboration planned for the 2011 National Family Conference, Edimer Pharmaceutical, Inc. will be working with the NFED to characterize skin properties in male siblings affected by HED and unaffected male controls using skin assessment techniques.  As part of…