As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.
How Virtual Advocacy Day Works
Find out how easy it is to participate in a Virtual Advocacy Day! We’ll you through the process of how you can raise your voice and help move the Ensuring Lasting Smiles Act through Congress.
We 🧡 You, Volunteers!
April is Volunteer Appreciation Month! All of us at the National Foundation for Ectodermal Dysplasias (NFED) honor our 500+ volunteers who are the heart of our foundation. We value our volunteers all year long but April is a special month of showing our gratitude to you.
The Amazing Power of Helping Others!
Helping others can end up helping ourselves and our health. Find out ways you can help pay it forward!
Live Chat With the Fetes: Helping Your Teens Through the Pandemic
Mary Fete and Dr. Tim Fete share tips for helping teens with ectodermal dysplasias cope with life during the COVID-19 pandemic.
Celebrating Our Superman’s Legacy
Our hearts broke when Dr. Frank Farrington recently passed after a long illness. We recall with much love and gratitude his amazing legacy after 40 years of service to the NFED and our families.
Tim Mickelson Joins NFED Team
We are excited to introduce you to the newest member of our team, Tim Mickleson. He will serve as the Director of Development. “Tim brings 30+ years of experience in the corporate and nonprofit world,” said Mary Fete, executive director of the National Foundation for Ectodermal Dysplasias. “We look forward to him leading our fundraising…
The Most Beautiful Sight
The Stollers spent the first few years of their daughter, Kambree’s life, trying to figure out what was causing all of her different, possibly unrelated, symptoms. When Kambree was finally diagnosed with ectodermal dysplasia, professionals and genetic testing couldn’t pinpoint which type she might have. Until an NFED Family Conference changed their life. They found something they didn’t realize they were seeking.