At the NFED, we hold a special place in our hearts for our volunteers. Donna Garrett-Miller is a proud volunteer who has left her mark on the ectodermal dysplasias community after just one year since her grandson was diagnosed with AEC syndrome.
What Makes A Child With Ectodermal Dysplasia Forever Strong?
Growing up isn’t easy, especially if you are a child affected by ectodermal dysplasia.
Blessed On A Sunny Day
Lily’s symptoms turned Alexus Abney and her fiancé’s lives upside down. However, this sweet baby has been a blessing to their lives in many different ways.
You are Strong!
As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.
How Virtual Advocacy Day Works
Find out how easy it is to participate in a Virtual Advocacy Day! We’ll you through the process of how you can raise your voice and help move the Ensuring Lasting Smiles Act through Congress.
We 🧡 You, Volunteers!
April is Volunteer Appreciation Month! All of us at the National Foundation for Ectodermal Dysplasias (NFED) honor our 500+ volunteers who are the heart of our foundation. We value our volunteers all year long but April is a special month of showing our gratitude to you.
The Amazing Power of Helping Others!
Helping others can end up helping ourselves and our health. Find out ways you can help pay it forward!
Live Chat With the Fetes: Helping Your Teens Through the Pandemic
Mary Fete and Dr. Tim Fete share tips for helping teens with ectodermal dysplasias cope with life during the COVID-19 pandemic.