Celebrate #GivingNFEDTuesday this year by creating a Facebook Fundraiser.
Be Cool to Oneself
Cyprian Katongo encourages others affected by ectodermal dysplasia to be who they are and not give in to the bullies who may diss them. Whether you live in Africa, the United States or somewhere else, he has a message of hope for you.
Understanding the WNT10A Gene
In recent years, we have learned that one gene is now the cause for three different types of ectodermal dysplasia. Learn more about the gene called WNT10A and how it manifests.
Help Us Crush Our 2019 Goals
You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.
Make Your Donations at Work
You can donate to the NFED through the United Way or the Combined Federal Campaign. Learn how to double your donation through a matching gift.
Teaming Up with Other Patient Advocates on the Hill
Persistence is the name of the game for getting a bill passed in Congress. NFED leadership was in D.C. last week speaking up for issues important to our families.
Testing a Non-invasive Way to Diagnose XLHED In Utero
Dr. Angus Clark is investigating a new, noninvasive way to diagnose x-linked hypohidrotic ectodermal dysplasia in utero. His findings could help facilitate the upcoming clinical trial for treatment. We are proud to fund this work.
Keep on Trucking
At 45, Erica Merriweather has spent a lifetime being treating differently, even bullied, because her teeth are different due to ectodermal dysplasia. Now, she’s fighting to get treatment.