Volunteering for the NFED is My Opportunity to Give Back

August 19, 2015July 25, 2019 Category: Stories of Hope Posted by Lea Richardson

By David Sanmiguel

The NFED has been a very important part of my family’s life, since the day my daughters were diagnosed. The moment my family and I became members of this great organization we only received good things, along with a warm welcome, understanding, help, information and great times.

Simply put, everything has been wonderful. Our daughters’s smiles tell it all. These smiles were made possible by generous donors who donate relentlessly to the NFED to create smiles like these!

I have been involved in volunteering with the NFED for years, and have always found a way to make time for it. I volunteer because I find something incredibly satisfying about acting in a way that is consistent with my principles. Being able to say I helped to better something in the lives of others makes me feel wonderful.

My wife and I have translated two of the NFED books into Spanish: Lionel Learns What Matters Most and Carver’s New Smile. We are in the process of translating additional material into Spanish. Every little bit helps to spread awareness.  We will continue to support the NFED by helping in any way we can.

Volunteering for the NFED is my opportunity to give back. It is a reminder that our lives were put here, together, and we need to remember to support each other. Life has so much to offer. We just have to remember to look beyond ourselves.

I am an NFED volunteer because I want to give back. It’s as easy as that. If I can do something to help those who helped me, why wouldn’t I?

Editor’s Note:

David Sanmiguel and his wife, Ana, are the proud parents of twin girls, Alicia and Luna, who are both affected by hypohidrotic ectodermal dysplasia (HED). The family lives in Orlando, Florida.

Would you like to volunteer for the NFED? Email Lea Richardson, NFED manager, community engagement, at lea@nfed.org or call her at 618-566-6871. You can also learn more on our website about volunteering. 

Other Volunteer Stories:

Support Each Other – We Are Family

She Was One of the Founding Families as a Toddler in 1981. Today, She’s an Advocate for the Community

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