ELSA begins its journey in the 117th Congress with incredible bi-partisan support! Find out what this means and how you can help make this important bill become a law.
What I Learned from My Three-Year Dental Treatment Journey
Jamie Sommerville shares her best tips for how to get your insurance company to cover the dental treatment you need. Plus, learn what NFED resources made all the difference.
Know the Facts About the COVID-19 Vaccine
We offer key information to help you determine with your physician whether or not you should get the COVID-19 vaccine.
When Your Child Is Diagnosed With Failure To Thrive
It’s not easy when your child is not growing as expected. You want them to be healthy. A mom shares her emotional journey with her toddler who has failure to thrive (FTT) and hypohidrotic ectodermal dysplasia. Explore a new resource the NFED offers for FTT.
This Will Change You in the Best Way
The Fenoglio / Fodor family is showing their son Jackson how proud they are of him by volunteering. They believe in supporting your family. And for them, the NFED is family.
Families Rise Up for International Ectodermal Dysplasias Awareness Day
Sporting blue, families take to social media to celebrate their loved ones affected by ectodermal dysplasia.
Pregnant Mom Travels Around the World For Her Unborn Son
A mom’s dream to give her unborn son working sweat glands sent her on a journey around the world during a pandemic. Watch this video to hear her story and the treatment for x-linked hypohidrotic ectodermal dysplasia they received.
Only Your Voice Can Tell the Story
The momentum for the Ensuring Lasting Smiles Act continues to build in this new session of Congress. Find out how using your voice on April 28 is the only way to demonstrate the importance of this bill.