See the incredible impact you helped make in 2024! From growing global connections to life-changing smiles and advocacy wins, our latest blog highlights the 2024 Impact Report. Don’t miss this inspiring look back!
ELSA Has Been Reintroduced in the 119th Congress!
All of our advocacy, dedication and background work have finally paid off! We are excited to announce that the Ensuring Lasting Smiles Act (ELSA) was reintroduced on Thursday, May 8th in both chambers of the 119th U.S. Congress. House Bill: H.R.3277 Senate Bill: S.1677 We are extremely thankful for our dedicated bill leads: Senator Tammy…
Why Lindsey and Keegan Keep Coming Back to Family Conference
Curious what brings families back to the NFED Family Conference year after year? Keegan and his mom, Lindsey, share why this event means so much to them and why after six years away, they’re attending this summer’s Conference.
How Music Helped Ally Blossom with EEC
Ally has never let ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome define her life. Thanks in part to the NFED community, music has helped Ally blossom into an inspiring young woman. She’s now on track to become a music therapist, where she’s sure to help and inspire countless others.
NFED Unveils Bold New Mission Statement
The NFED has a new mission statement, and it’s all about you. This blog breaks down what’s changed, why it matters, and how it makes our community stronger. Whether you’re living with ectodermal dysplasia or supporting someone who is, this update is all about you—and the brighter future we’re building together. Come take a look!
How You Can Help ReIntroduce ELSA in Congress
Co-chairs of the National Foundation for Ectodermal Dysplasias (NFED) Family Advocacy Committee give an update on the reintroduction of the Ensuring Lasting Smiles Act (ELSA) in Congress.
How Matthew Can Help Change the Future of XLHED
Curious how a baby can help change the future of a rare genetic condition? Read how Beth and Peter joined a groundbreaking clinical trial while Beth was still pregnant, giving their son, Matthew, early treatment for XLHED. It’s an emotional, uplifting story about science, family, and hope for generations to come.
Celebrating Before and After Smiles
Behind every bright smile is a journey of courage, resilience, and transformation. Discover the powerful stories of individuals with ectodermal dysplasia who overcame obstacles to achieve healthy, functional teeth and see their before and after photos. Let their experiences inspire your own path to oral health—and explore the resources that can help you every step of the way.