Conference Means Knowing My Son is Not Alone

by Jennifer Hagerty With the National Family Conference fast approaching, I find myself reflecting and thinking about how much fun it would be to attend. Joshua is almost four years old and already knows that he has ectodermal dysplasia/AEC syndrome. He does not quite understand it but he knows it makes strangers gawk, point, whisper,…

Managing Temperatures at Disney and Meeting Magical Friends

by Melva Jeter With the summer, comes the NFED annual Family Conference, this year in Orlando, Florida. Now, being from Colorado, I thought it was incredibly cool in 2010 when the conference was in Colorado Springs, but Orlando?  And so close to Disney World, Universal Studios and Sea World? This is a kid’s dream-come-true year!…

Not a Family Conference…It's a Family Reunion

by Dee Dee Olsen I attended our first National Family Conference when our daughter, Jade, was two years old.  I have never been so affected by such an outpouring of emotion, support, and information.  It truly was remarkable.  I vowed to make Family Conference an annual event, which it has been for eight years.  The…

Where to Shop, Eat, and Golf While You are at the NFED Fam Con 2012

Downtown Disney Nestled across the street from the luxurious resort of Buena Vista Palace Hotel & Spa where the NFED National Family Conference is being held, Downtown Disney® Marketplace waits to entertain and inspire. Offering a large array of shops and eclectic stores, the shopping area also features exhilarating nighttime fun and a wide selection…

What do your Family Conference fees actually pay for?

Basically, all your fees pay for is your food. We solicit sponsors, grants and use general donations to fund room rentals, speakers’ (12-15 unbelievable docs and dentists donate their time each year) and staff travel, scholarship recipients, off site activities, AV rental and childcare costs.The NFED absorbs 75% of the cost of the event. The 2012…