Hopefully this inspires you to attend this year’s conference at the Hilton Garden Inn in O’Fallon, Illinois! It will change your life. Watch and see why. https://www.youtube.com/user/EctodermalDysplasias?feature=mhum#p/a/u/0/Qok2STHX-T0 Since 1981, the National Foundation for Ectodermal Dysplasias has hosted an annual conference where individuals affected by ectodermal dysplasias and their families gather to receive information and support….
Motivational Speaker: John Foppe
On Thursday 21 July, 2011 we officially welcome you to our 30th Annual National Foundation for Ectodermal Dysplasias National Family Conference @ 1PM. Lunch is NOT included! Master of Ceremonies Sean Vora will welcome everyone and give a brief overview of the events that will take place throughout the weekend. You don’t want to miss…
Important Update: Registration Deadline & Hotel
National Family Conference Registration Deadline is Today, June 30th! There is still time for you to register. Don’t miss out on the opportunity to meet others affected by ectodermal dysplasia, hear from physicians who know about ectodermal dysplasias, and have a super, fun-filled conference experience. To register, simply fill out the registration form and fax…
Bios of our 2011 National Family Conference Speakers
You don’t want to miss their valuable information! Hope you will attend as many sessions as possible! Dr. Alanna F. Bree, M.D. Dr. Bree is a dermatologist in private practice at Dermatology Specialists of Houston. Formerly she was an Assistant Professor of Dermatology and Pediatrics at Baylor College of Medicine. She graduated from Southern Illinois…
NFED 2010 Annual Report
Our 2010 Annual Report is now on-line for everyone to view! We felt that we should include this media source to spread the word! https://nfed.org/wp-content/uploads/2019/11/NFED-2010-Annual-Report.pdf Happy Reading!
Legendary New Zealand Skateboarder Levi Hawken
Levi is affected by Ectodermal Dysplasia, but that does not deter him from doing what he loves most: Skateboarding. Check out his video. Wow! Amazing! https://tvnz.co.nz/20-20-news/week-june-23-4247765/video?vid=4260470 Happy Viewing! Enjoy!
Miles & Smiles @ the NFED Family Conference
Have you ever wondered how far you walk over the course of three days at the Family Conference? Well, not only have we come up with a way for you to track it, we figured out a way for you to raise money while you do it! The NFED is hosting Miles & Smiles at…
More on Splash City Waterpark ! Fun, Fun, Fun!!
Splash City Family Waterpark is Fun for the Whole Family! Splash City is located at 10 Gateway Drive in Collinsville, Illinois. Parking is always free! Just a few housekeeping items worthwhile for you to know ahead of time! Appropriate Attire is Required: Guests MUST wear a lined swimsuit to participate in all water park activities. Revealing…