Please, check out the article with interview and 7 great pictures on the NFED outing to Splash City Waterpark! Image : Heat is tough on those with rare genetic disorder.
Info on Tour of NFED Office, Saturday 24 July, 2011
If you are interested in touring the NFED office in Mascoutah, IL after the conference is over, please do so! However, the NFED will not provide transportation. Driving Directions to our office were given at registration! Please, ask any of the staff if you cannot find your driving directions. We will be glad to direct…
Saturday 23 July, 2011 Conference Schedule
6:30AM – 8AM Breakfast 8AM – Noon Dental General Session 8AM – 9:15AM Pediatrics……….Dr. Wright 9:15AM – 10:30AM Implants……..Dr. Stanford 10:30AM – 11AM Insurance/ Treatment Centers 11 AM – Noon Dental Stages 10 AM – 11 AM International Group Leaders Meeting Noon – 1:30PM Lunch……the Kids eat @ Kids’ Camp 1:45PM – 2:45PM General Session…
Saturday July 23rd, 2011, NFED Kid’s Camp Schedule
Starting time: 7:30AM- 3:30PM Schedule: Ages 3-5 years: Our precious Munchkins Crazy Kid’s Carneval: Crazy Clowns, Classic Carneval Games, Lunch Break, Marvelous Magic Show & Photo Booth Fun! Ages 6-8 years: Cool Kids Tri-Wizard Tournament: Wonderful Wizard Cloaks, Perfect Potter Tattoos, Wonderful Wands, Wild Wizard Games, Lunch Break, Marvelous Magic Show & Game Time. Ages…
Hope… from a mouse
As I sat and listened to Dr. Maranke Koster speak, yesterday and this morning, about the process of turning skin cells into induced pluripotent stem (iPS) cells, I was beyond amazed… I was filled with hope. Hope… from a mouse. If you had told me thirty years ago that I would one day look at…
Buffet Lunch for Purchase on Thursday, 21 July 2011
As all of you are aware, lunch is not provided on the first official day of our NFED National Family Conference. The Hotel’s restaurant is normally not open on Thursdays, but the Sous Chef and his staff decided to offer a buffet menu on Thursday, 21 July 2011 in the Hilton Garden Inn Hotel Restaurant: The…
Meet the Kelso’s & Huxman’s! Who are they???
The Kelso and Huxman families met in 2006 at the NFED Family Conference in St. Louis. Both have children affected by EEC Syndrome and they found an instant connection with one another. Before that conference had ended, they were finishing each other’s sentences; their children were referring to themselves as “cousins”; and they were making…
Teen Fieldtrip on Friday 22 July, 2011
Our Teens are going to have an awesome fieldtrip to The Edge, the world’s largest laser tag arena on Friday 22 July, 2011. A 14,000 sq. ft. multi level arena with trees, castles, wizzards, vines and creatures. The NFED will provide 2 games of laser tag and pizza for the teens (age 12-18). The bus…