Meet George, an actor who just earned a place at National Youth Theatre in London. Great story from the UK, “When I am performing my condition doesn’t hold me down. I can be anything I want to be and I want to show everyone that.” Read about it here!
Update: Don't Sweat It Golf Classic! 8/17/2011
Don’t Sweat It Golf Classic The Hamm family and their volunteer crew have done it again. Their Don’t Sweat It Golf Classic in Texas this past weekend raised an amazing $40,000 for the NFED! We send out a huge thank you to everyone who helped Paul, Susan and Zach make this a huge success. Please,…
Regional Family Conference in Jackson, MS
We have mailed the registration form of the Regional Family Conference to be held in Jackson, MS at the Jackson Marriott Hotel on Saturday, September 10th, 2011 to all constituents in Mississippi and surroundings states. Most of you should have received this form/flyer with program by now! If not, click on the highlighted link which will take you…
2011 Don't Sweat It Golf Classic in Texas!
Please, check out another great fundraiser for the NFED: the Zach Hamm Don’t Sweat It Golf Classic in Spring, Texas! This Golf Tournament will be held on Sunday, August 14th. Click on the link for more info!
2011 Halloween Bash in New York City!
One of the biggest fundraisers of the year for the NFED is the Halloween Bash in New York City. Please, Click on the word Halloween Bash for Save the Date Info. More information will follow as soon as it is available!
How do we pick our National Family Conference Site?
Location, Location, Location! Have you ever wondered how we pick all the fun and exotic places that the NFED holds the National Family Conference? Do we throw a dart at a map and select our fate? The process is a little more scientific than that. To keep things fair for all parts of the country,…
Could not come to our National Family Conference? Tell Us Why!
Our 2011 National Family Conference is sadly enough over with. Almost 400 individuals were in O’Fallon, Illinois to learn about the ectodermal dysplasias and met others who are similarly affected. We are thrilled that so many families were able to join us. If you were not able to attend this year’s Family Conference, we want…
NBC St. Louis TV Interview @ NFED National Family Conference
Please, check out the TV interview by KSDK St. Louis during our NFED National Family Conference in O’Fallon, IL Great exposure for the NFED. https://www.ksdk.com/news/article/268092/3/Despite-hot-days-rare-genetic-disorder-keeps-people-from-sweating