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Location, Location, Location! Have you ever wondered how we pick all the fun and exotic places that the NFED holds the National Family Conference?  Do we throw a dart at a map and select our fate?  The process is a little more scientific than that. To keep things fair for all parts of the country,…

Our 2011 National Family Conference is sadly enough over with. Almost 400 individuals were in O’Fallon, Illinois to learn about the ectodermal dysplasias and met others who are similarly affected.  We are thrilled that so many families were able to join us. If you were not able to attend this year’s Family Conference, we want…

Please, check out the TV interview by KSDK St. Louis during our NFED National Family Conference in O’Fallon, IL  Great exposure for the NFED.  https://www.ksdk.com/news/article/268092/3/Despite-hot-days-rare-genetic-disorder-keeps-people-from-sweating

Please, check out the article with interview and 7 great pictures on the NFED outing to Splash City Waterpark! Image : Heat is tough on those with rare genetic disorder.

If you are interested in touring the NFED office in Mascoutah, IL after the conference is over, please do so!  However, the NFED will not provide transportation.  Driving Directions to our office were given at registration! Please, ask any of the staff if you cannot find your driving directions.  We will be glad to direct…

6:30AM – 8AM Breakfast 8AM – Noon   Dental General Session 8AM – 9:15AM  Pediatrics……….Dr. Wright 9:15AM – 10:30AM   Implants……..Dr. Stanford 10:30AM – 11AM     Insurance/ Treatment Centers 11 AM – Noon     Dental Stages 10 AM – 11 AM     International Group Leaders Meeting Noon – 1:30PM    Lunch……the Kids eat @ Kids’ Camp 1:45PM – 2:45PM   General Session…