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My Story: Emotional Resilience and Hope

by Marcela Hernandez Lack of confidence has daunted me all my life, from childhood and even into my adult life. I was born and raised in Uruguay, a small country in South America, the youngest child of a middle class family. They supported me and gave me everything within their possibilities, from material things such…

What A 10-Year Old Girl With HED Wants Her Dentists to Know

The following is a speech delivered by 10-year old Allison at a Dental Pathology Class in the Dental Hygienist Program at Des Moines Area Community College. She and her mother, Jenny, presented at the class for Ectodermal Dysplasias Awareness Month. Hi everyone, my name is Allison.  I am a 4th grader in Iowa. My parents tell me that…

Who Could Say "No" to Mary Kaye Richter?

By John A. Stith, M.D. , Professor, Pediatric Otolaryngology Saint Louis University School of Medicine, NFED Board of Directors and Patient Care Council I have been privileged to serve the NFED as a member of the board of directors for several years. It seems like yesterday when Dr. Tim Reichert invited me to consider becoming…