by Marcela Hernandez Lack of confidence has daunted me all my life, from childhood and even into my adult life. I was born and raised in Uruguay, a small country in South America, the youngest child of a middle class family. They supported me and gave me everything within their possibilities, from material things such…
Why I Volunteer for NFED: My Son and Others Like Him
By Jill Radley I found the NFED in 1992, upon the recommendation of my childhood dentist at the University of Minnesota. When I received the literature packets I had a light bulb moment. I looked at the pictures and I felt that I was looking in the mirror. It explained so much to me. I…
Wigs
Some people are comfortable with their appearance and may find a wig unnecessary. Others choose to wear wigs to improve self-image and increase self-confidence in social situations. The decision to wear a wig is, and should be, a personal choice. A child should not be forced to wear a wig. Providing the option to wear…
The NFED Doesn't Need You!
Who needs volunteers? Not the NFED. We can do without volunteers! No need to ask for a helping hand, our staff can do it all. Why create a strong Volunteer base? Volunteers are overrated, a nuisance, and a royal pain. Today is a celebration of mischief and misbehavior. It has become tradition on the first…
What A 10-Year Old Girl With HED Wants Her Dentists to Know
The following is a speech delivered by 10-year old Allison at a Dental Pathology Class in the Dental Hygienist Program at Des Moines Area Community College. She and her mother, Jenny, presented at the class for Ectodermal Dysplasias Awareness Month. Hi everyone, my name is Allison. I am a 4th grader in Iowa. My parents tell me that…
15 Reasons to Attend Family Conference
I could list way more than 15 reasons why you join meet us in St. Louis this July. But, this list will get you started. Tour St. Louis: Did you know St. Louis has cheese you can get nowhere else? Refresh and Recharge: Take a few days off from your busy schedule and relax and…
Greetings from the NFED
Happy Spring! Or, at least we hope it arrives soon. What’s going on at the NFED? Needless to say, we are busy, busy, busy! I would like to share with you our progress towards our goals and other activities. Family Conference We are in full gear preparing for a great Family Conference in St. Louis,…
Who Could Say "No" to Mary Kaye Richter?
By John A. Stith, M.D. , Professor, Pediatric Otolaryngology Saint Louis University School of Medicine, NFED Board of Directors and Patient Care Council I have been privileged to serve the NFED as a member of the board of directors for several years. It seems like yesterday when Dr. Tim Reichert invited me to consider becoming…