This NFED guide is written for parents who are expecting a child or have a newborn affected by Goltz syndrome (also known as focal dermal hypoplasia). This comprehensive guide gives parents and caregivers with both medical information and practical advice. It reassures you that while Goltz syndrome can present challenges, many children go on to…
A Guide to the First Year of Life: Hypohidrotic Ectodermal Dysplasia
This guide is a comprehensive resource to help parents care for their baby affected by hypohidrotic ectodermal dysplasia (HED). HED is a rare condition defined by the inability to sweat, missing teeth and sparse hair. But, it can also affect many other body parts. A new diagnosis may be overwhelming as you learn about the…
Failure to Thrive and Ectodermal Dysplasias
Growth abnormalities are common in children with ectodermal dysplasias. In this article, learn what it means when a child is diagnosed as Failure to Thrive or FTT. Dr. Kathleen J. Motil defines the condition and explains what it means for any child as well as those with ectodermal dysplasias. How common is it? Does it…