Want to learn exciting updates on the Edelife Clinical Trial, a potential prenatal treatment for boys affected by x-linked hypohidrotic ectodermal dysplasia (XLHED)? Download our library resource to watch this 45 minute webinar.
Sweat Test Options in Ectodermal Dysplasias
In some types of ectodermal dysplasia, the inability to sweat (hypohidrosis or anhidrosis) can lead to serious health risks like overheating. Several investigational and clinical sweat tests may help determine if sweat glands are present and functioning. In this article, you will learn about several types of sweat test options in ectodermal dysplasias. In-office methods…
Ectodermal Dysplasias and Fingerprints
Dr. Rylee Moody explains what adermatoglphyia is and how it leads to partial or complete lack of fingerprints. It’s a condition where someone has the absence of skin ridges and furrows. It can also appear on other parts of the body. There are two subtypes of adermatoglphyia: isolated congenital adermatoglyphia and adermatoglyphia-associated syndromes. Many types…
A Guide to the First Year of Life: Hypohidrotic Ectodermal Dysplasia
This guide is a comprehensive resource to help parents care for their baby affected by hypohidrotic ectodermal dysplasia (HED). HED is a rare condition defined by the inability to sweat, missing teeth and sparse hair. But, it can also affect many other body parts. A new diagnosis may be overwhelming as you learn about the…
Fever and Ectodermal Dysplasia
Fever can cause angst and concern for parents of children affected by ectodermal dysplasia. In this article, Dr. Timothy J. Fete and Dr. Clayton Butcher explain in detail what you need to know about fever to help you treat yourself or your child. Generally, fever is good for the body when it is fighting infection….
Webinar: Skin, Hair and Nails in the Ectodermal Dysplasias
Learn about four of the five major symptoms of ectodermal dysplasias in this webinar with pediatric dermatologist, Dr. Alanna Bree. She presents in-depth information about how the sweat glands, skin, hair and nails can be affected and ways to manage or treat them. You will learn: About the Expert Alanna F. Bree, M.D. is a…
Webinar: Learn How New XLHED Clinical Trial Could Affect Future Generations of Your Family
The NFED’s decades-long effort to develop a potential treatment for x-linked hypohidrotic ectodermal dysplasia (XLHED) is coming closer to fruition. Carline Durand and Agnes Jaulent, PhD from espeRare share the latest information (as of October 14, 2020) on the development of the protein ER-004 as a treatment for x-linked hypohidrotic ectodermal dysplasia (XLHED). In this…
Webinar: Ectodermal Dysplasias 101 – Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…