Many children affected by ectodermal dysplasias may develop few if any teeth. Others may have teeth that erupt late. These issues can make it challenging for a child to transition from breast milk or formula to solid foods. In this article, Dr. Kathleen J. Motil, a professor in Pediatrics-Gastroenterology, Hepatology, & Nutrition at Baylor College…
A Guide to the First Year of Life: Hypohidrotic Ectodermal Dysplasia
This guide is a comprehensive resource to help parents care for their baby affected by hypohidrotic ectodermal dysplasia (HED). HED is a rare condition defined by the inability to sweat, missing teeth and sparse hair. But, it can also affect many other body parts. A new diagnosis may be overwhelming as you learn about the…
Fever and Ectodermal Dysplasia
Fever can cause angst and concern for parents of children affected by ectodermal dysplasia. In this article, Dr. Timothy J. Fete and Dr. Clayton Butcher explain in detail what you need to know about fever to help you treat yourself or your child. Generally, fever is good for the body when it is fighting infection….
Causes and Recommendations for Respiratory Issues in Ectodermal Dysplasias
Are individuals affected by ectodermal dysplasias at increased risk for respiratory problems? Our families often ask this question. In this article, Dr. Timothy J. Fete has the answer. He shares findings from numerous research studies over the years that investigated different types of ectodermal dysplasias and the respiratory issues affected individuals reported. Learn what causes…
Ectodermal Dysplasia Syndromes and Limb Abnormalities
While the skin, hair, teeth, nails and sweat glands are the primary body parts affected by ectodermal dysplasias, the hands and feet can also be impacted. Learn about two of subtypes of ectodermal dysplasias which include these limb abnormalities: ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome and ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. These syndromes both involve…
Cleft Lip And Cleft Palate
Cleft lip and cleft palate are common birth abnormalities in the general population. Dr. Dana Jackson shares statistics of how many are affected and within races. Cleft lip and cleft palate is a key feature in two different types of ectodermal dysplasias: ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome and ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. In…
Tips for Incontinentia Pigmenti Eyes
Incontinentia pigmenti (IP) is a type of ectodermal dysplasia that can significantly affect the eyes. This article provides information to help you better understand the terminology and best practices for treating the eyes. It’s written by Lacy Light, a mother of a child with IP and an ophthalmologist, Richard A. Lewis, M.D. Learn what examinations…
Failure to Thrive and Ectodermal Dysplasias
Growth abnormalities are common in children with ectodermal dysplasias. In this article, learn what it means when a child is diagnosed as Failure to Thrive or FTT. Dr. Kathleen J. Motil defines the condition and explains what it means for any child as well as those with ectodermal dysplasias. How common is it? Does it…