Clouston syndrome is a type of ectodermal dysplasia that primarily affects the hair and nails. It’s also known as hidrotic ectodermal dysplasia. In this article, you will learn more about how the syndrome affects different body parts and how a parent can passed the condition to a child. Authors Rylee Moody, an M.D. candidate at…
A Guide to the First Year of Life: Hypohidrotic Ectodermal Dysplasia
This guide is a comprehensive resource to help parents care for their baby affected by hypohidrotic ectodermal dysplasia (HED). HED is a rare condition defined by the inability to sweat, missing teeth and sparse hair. But, it can also affect many other body parts. A new diagnosis may be overwhelming as you learn about the…
Webinar: Skin, Hair and Nails in the Ectodermal Dysplasias
Learn about four of the five major symptoms of ectodermal dysplasias in this webinar with pediatric dermatologist, Dr. Alanna Bree. She presents in-depth information about how the sweat glands, skin, hair and nails can be affected and ways to manage or treat them. You will learn: about the importance of loving the skin you are…
Ectodermal Dysplasias 101: Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Webinar: Skin Concerns – The Big Three: Skin, Hair and Nails
Watch this one-hour webinar we hosted with pediatric dermatologist Alanna Bree, M.D. She addresses the changes in skin, hair, nails that are typical in people affected by ectodermal dysplasias. These changes can have a significant impact on those affected by them. They can also help clinicians diagnosis what type of ectodermal dysplasia a patient is…
Fingernail Infections
People affected by some types of ectodermal dysplasias may experience fingernail infections because of their nail abnormalities. This article explains causes and treatment for the infections.
Nailing Down Some Common Nail Problems in Ectodermal Dysplasias
Different nail changes can occur in ectodermal dysplasias. This article addresses general nail issues as well as in these types: HED Clouston Goltz syndrome AEC syndrome EEC syndrome Description and treatment information are given for Development and Growth Treatments Thin Nails Thick Nails Curved Nails Loose Nails Discolored Nails Infection