This guide is a comprehensive resource to help parents care for their baby affected by hypohidrotic ectodermal dysplasia (HED). HED is a rare condition defined by the inability to sweat, missing teeth and sparse hair. But, it can also affect many other body parts. A new diagnosis may be overwhelming as you learn about the…
Causes and Recommendations for Respiratory Issues in Ectodermal Dysplasias
Are individuals affected by ectodermal dysplasias at increased risk for respiratory problems? Our families often ask this question. In this article, Dr. Timothy J. Fete has the answer. He shares findings from numerous research studies over the years that investigated different types of ectodermal dysplasias and the respiratory issues affected individuals reported. Learn what causes…
Ectodermal Dysplasias 101: Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: How to Treat Nasal Rocks, Ear Wax and Other ENT Issues
This is a recording of a webinar that took place on June 20, 2020. Dr. Brandon Hopkins addresses numerous topics as to how ectodermal dysplasias can affect the ears and hearing; the nose (airway and sinonasal); oral cavity and throat. You will learn: how ectodermal dysplasias can affect the ears, including the structure, ear infections…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Webinar: Ear, Nose and Throat Issues in the Ectodermal Dysplasias
Watch this one-hour webinar that we hosted. Raj Sindwani, M.D. FACS, FRCS(C) discusses in detail the ear, nose, and throat issues associated with ectodermal dysplasias. He explains what they are and provides suggested treatments. Dr. Sindwani is Vice Chairman and Head of the Section of Rhinology, Sinus and Skull Base Surgery of the Head and Neck…
Treating Ear Wax Impaction
Ear wax is ordinarily removed from the ear canal by the traveling of skin cells towards the outside. This orderly pattern is disrupted in ectodermal dysplasias and results in the accumulation of wax in the ear canal. This article provides three treatment options.