Many children affected by ectodermal dysplasias may develop few if any teeth. Others may have teeth that erupt late. These issues can make it challenging for a child to transition from breast milk or formula to solid foods. In this article, Dr. Kathleen J. Motil, a professor in Pediatrics-Gastroenterology, Hepatology, & Nutrition at Baylor College…
Ectodermal Dysplasias 101: Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Feeding Tubes and Gastroesophageal Reflux
Parents of children affected by ectodermal dysplasias often express concerns about gastroesophageal reflux disease (GERD). This article explains: weight and failure to thrive GERD treating GERD feeding tubes
Gastroesophageal Reflux
Children with certain types of ectodermal dysplasias, especially hypohidrotic ectodermal dysplasia, can experience gastroesophageal reflux. This article explains what it is, what causes it and how to treat it.
Constipation
People with certain types of ectodermal dysplasias may experience constipation. This article explains and offers suggested treatments.