Women who have hypohidrotic ectodermal dysplasia (HED) or who are carriers of x-linked hypohidrotic ectodermal dysplasia (XLHED) can face challenges when they begin breastfeeding such as trouble producing milk. We recommend that you make a breastfeeding plan with your doctor or alactation specialist. Use this article to learn about how XLHED affects the breast and…
Hypohidrotic Ectodermal Dysplasia and Breastfeeding: A Resource for Care Providers
This article is written for health care providers and lactation specialists to help them understand the unique breastfeeding challenges a woman affected by hypohidrotic ectodermal dysplasia (HED) may experience. Because the effects of HED are not well known, care providers might assume the breastfeeding challenges a mom encounters are because the mom is or is…
Breast Issues in Ectodermal Dysplasias
Ectodermal dysplasias can affect breast development in both women and men. In this article, you can will learn the following: Why would breasts be involved with ectodermal dysplasias? How often do the breasts develop abnormally with ectodermal dysplasias? What kinds of issues and concerns are there with abnormal breast development? What options are there to…
Webinar: Women’s Health Study
Watch this one-hour webinar that we hosted with Jill Powell, M.D. She presents the findings from a research survey we conducted about how ectodermal dysplasias affect women. She presents data and findings regarding issues such as breast development, infertility, vaginal dryness, and more. Dr. Powell is an obstetrician and gynecologist SLUCare Physicians Group in St….
Female-Specific Issues in Ectodermal Dysplasias
This article summarizes the findings from an NFED survey regarding what symptoms women affected by ectodermal dysplasia experience. It includes sweating, puberty, breast issues, breastfeeding, pubic hair, vaginal issues and infertility.