This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Guidelines for Vulvar Skin Care in Ectodermal Dysplasias
The article is packed with practical suggestions on how to address vulvar and vaginal issues that women affected by ectodermal dysplasias may experience. You will learn what laundry products to use and which ones to avoid. There are numerous suggestions on types of clothing and how they can affect vaginal issues. There is an extensive…
Skin Care: Sun and Bugs
Extra protection is needed when outdoor sun exposure is excessive, during warmer, sunnier months and at snowy, high altitude locations. Ultraviolet light is responsible for aging changes in the skin as well as for some types of skin cancer. This article addresses sun protection, choosing a sun screen, choosing a bug repellent and ingredients to…
Webinar: Skin Concerns – The Big Three: Skin, Hair and Nails
Watch this one-hour webinar we hosted with pediatric dermatologist Alanna Bree, M.D. She addresses the changes in skin, hair, nails that are typical in people affected by ectodermal dysplasias. These changes can have a significant impact on those affected by them. They can also help clinicians diagnosis what type of ectodermal dysplasia a patient is…
Skin Care Tips For Eczema And Dry Skin In Ectodermal Dysplasia
This article provides tips for treating eczema and dry skin in the ectodermal dysplasias, including: bathing tips moisturizers topical steroid medications prescription topical non-steroid medications oral medications for itching what to do for flares
Sun Protection
Excess sun exposure and sunburns are the major cause of all skin cancers. Brief intense sun exposure is a significant risk factor for the development of melanoma, the most deadly form of skin cancer. Sun protection, especially in childhood, is the most important way to prevent skin cancer. This articles provides the best ways to…
Treating Facial and Diaper Rash in Ectodermal Dysplasias
Skin on the face and diaper area is more sensitive than at other sites. The most common cause of rash on these areas is irritation. Skin irritation starts with excessive dryness or wetness. This article provides the best ways to treat facial and diaper rashes.
Skin Care Recommendations for Skin Erosions
Ankyloblepharon-ectodermal dysplasia-clefting syndrome and ectrodactyly-ectodermal dysplasia-clefting syndrome can include skin erosion. These erosions, if not treated properly, can lead to infections and other serious issues. We convened two scientific conferences to learn more about skin erosion and how to treat them successfully. Based on these findings, this article provides information on what works, what doesn’t,…