This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Breast Issues in Ectodermal Dysplasias
Ectodermal dysplasias can affect breast development in both women and men. In this article, you can will learn the following: Why would breasts be involved with ectodermal dysplasias? How often do the breasts develop abnormally with ectodermal dysplasias? What kinds of issues and concerns are there with abnormal breast development? What options are there to…
Webinar: Skin Concerns – The Big Three: Skin, Hair and Nails
Watch this one-hour webinar we hosted with pediatric dermatologist Alanna Bree, M.D. She addresses the changes in skin, hair, nails that are typical in people affected by ectodermal dysplasias. These changes can have a significant impact on those affected by them. They can also help clinicians diagnosis what type of ectodermal dysplasia a patient is…
15 Ways to Stay Cool
When Outdoor Temperatures Escalate, Be Prepared This article provides suggestions for how to cool down someone who has hypohidrosis, meaning they have diminished sweating.
Cooling Guide
Hypohidrosis: How To Stay Cool When You Can’t Sweat This article explains: hypohidrosis signs of overheating how to handle and prevent overheating participation in sports and everyday activities need for air conditioning various cooling products
How to Stay Cool When You Can’t Sweat
Many people affected by ectodermal dysplasia have hypohidrosis, meaning they do not perspire normally. This article addresses the frequently asked questions about it and overheating: What are the signs? Can brain damage occur because of overheating? Will Children Who Can Not Perspire Know Whether Or Not They Are Overheating? Can Individuals Affected By Hypohidrosis Participate…