Facebook fundraiser are an easy way for you to not only raise money for the NFED but to raise awareness about ectodermal dysplasias. This tool kit walks you step by step through the process of setting up a Facebook fundraiser to benefit the NFED. It includes directions for PC and mobile/tablet along with screen shots. It…
Dental Providers Insurance Tool Kit
Dental care is a medical necessity for those affected by ectodermal dysplasias, but most health insurance claims related to this care are automatically denied. We encourage individuals and families as well as dental providers to download our Dental Providers Insurance Tool Kit as a way to navigate this tricky situation. FOR DENTAL PROVIDERS Help patients…
Tooth Party Kit
Is your child getting a new set of dentures? Help them celebrate by throwing a Tooth Party! This Tooth Party Kit will help you make it a fun event for your child. It’s a great way to encourage them to wear their dentures. It includes materials for activities coloring pages bookmarks certificates and more! Start…
Insurance Tool Kit
A Step-by-Step Guide to Get Medical Benefits for Dental Care of Ectodermal Dysplasias Families affected by ectodermal dysplasias encounter a wide range of challenges as they strive to meet their needs and that of their children. They face troublesome problems such as treatment issues, school concerns and dealing with insurance companies. Ectodermal dysplasias are a diverse…
School Advocacy Toolkit
This NFED School Advocacy Toolkit includes the following: • Making a Case for Classroom Airconditioning and Humidification, which includes information on the federal laws that you may find helpful in supporting your request for classroom air conditioning • Letter from NFED Executive Director, Mary Fete about ectodermal dysplasia • Memo from Mary Fete stressing the…