Watch this one-hour webinar that we hosted with Jill Powell, M.D. She presents the findings from a research survey we conducted about how ectodermal dysplasias affect women. She presents data and findings regarding issues such as breast development, infertility, vaginal dryness, and more. Dr. Powell is an obstetrician and gynecologist SLUCare Physicians Group in St….
Webinar: Overview of Genetics
Watch this one-hour webinar we hosted with Dorothy Katherine Grange, M.D. She gives an overview of genetics as they relate to the ectodermal dysplasias. What are genetic conditions? How are they passed down? Is testing available? She answers all of these questions and more to help you understand the complexities of genetics. Dr. Grange is…
How Ectodermal Dysplasias Can Affect Growth
Growth abnormalities are common in children with ectodermal dysplasia. This article explains the various ways growth is impacted and how to address those issues.
Food Allergies and Ectodermal Dysplasias
The prevalence of food allergies in children with ectodermal dysplasia exceeds the occurrence in unaffected children. This article addresses: Etiology Clinical Features Specific Foods Evaluation Differential Diagnosis Treatment
What Does HED Look Like?
Hypohidrotic ectodermal dysplasia (HED) is a rare genetic condition characterized by • a reduced ability to sweat (hypohidrosis) • missing teeth, (hypodontia) and • fine sparse hair (hypotrichosis). This article summarizes symptoms, diagnosis, cause, testing, inheritance.
Female-Specific Issues in Ectodermal Dysplasias
This article summarizes the findings from an NFED survey regarding what symptoms women affected by ectodermal dysplasia experience. It includes sweating, puberty, breast issues, breastfeeding, pubic hair, vaginal issues and infertility.
Family Guide to the Ectodermal Dysplasias
This guide provides a general overview of the ectodermal dysplasias. It describes various symptoms and their treatment. It’s a great resource to share with extended family, doctors, dentists, teachers, social workers, and coaches.