This article is written for health care providers and lactation specialists to help them understand the unique breastfeeding challenges a woman affected by hypohidrotic ectodermal dysplasia (HED) may experience. Because the effects of HED are not well known, care providers might assume the breastfeeding challenges a mom encounters are because the mom is or is…
Webinar: Ectodermal Dysplasias 101 – Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: How to Treat Nasal Rocks, Ear Wax and Other ENT Issues
This is a recording of a webinar that took place on June 20, 2020. Dr. Brandon Hopkins addresses numerous topics as to how ectodermal dysplasias can affect the ears and hearing; the nose (airway and sinonasal); oral cavity and throat. You will learn: how ectodermal dysplasias can affect the ears, including the structure, ear infections…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
WNT10A Gene Causes Three Types of Ectodermal Dysplasia
WNT10A is a member of the WNT proteins family that is essential for the formation of tissues that arise from the ectoderm, including skin, hair, nails, teeth, and sweat glands. WNT10A is particularly important for the formation and shaping of both baby (primary) teeth and adult (permanent) teeth. Changes in the DNA) in WNT10A can…
How to Irrigate Your Nose
This library article provides tips for ways to irrigate the nose to help with nasal crusting. Nasal crusting is common in some types of ectodermal dysplasia. It is caused by abnormal mucus production or excessive accumulation. Learn how frequently to do them, the benefits, and the recipe to make yourself at home. Also find out…
Developing Your Child’s Self-Esteem
Healthy self-esteem is a child’s armor against the challenges of the world. Kids who feel good about themselves seem to have an easier time handling conflicts and resisting negative pressures. They tend to smile more readily and enjoy life. These kids are realistic and generally optimistic. In this article learn about what self-esteem is, signs…
Breast Issues in Ectodermal Dysplasias
Ectodermal dysplasias can affect breast development in both women and men. In this article, you can will learn the following: Why would breasts be involved with ectodermal dysplasias? How often do the breasts develop abnormally with ectodermal dysplasias? What kinds of issues and concerns are there with abnormal breast development? What options are there to…