While the skin, hair, teeth, nails and sweat glands are the primary body parts affected by ectodermal dysplasias, the hands and feet can also be impacted. Learn about two of subtypes of ectodermal dysplasias which include these limb abnormalities: ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome and ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. These syndromes both involve…
Cleft Lip And Cleft Palate
Cleft lip and cleft palate are common birth abnormalities in the general population. Dr. Dana Jackson shares statistics of how many are affected and within races. Cleft lip and cleft palate is a key feature in two different types of ectodermal dysplasias: ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome and ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. In…
Tips for Incontinentia Pigmenti Eyes
Incontinentia pigmenti (IP) is a type of ectodermal dysplasia that can significantly affect the eyes. This article provides information to help you better understand the terminology and best practices for treating the eyes. It’s written by Lacy Light, a mother of a child with IP and an ophthalmologist, Richard A. Lewis, M.D. Learn what examinations…
Failure to Thrive and Ectodermal Dysplasias
Growth abnormalities are common in children with ectodermal dysplasias. In this article, learn what it means when a child is diagnosed as Failure to Thrive or FTT. Dr. Kathleen J. Motil defines the condition and explains what it means for any child as well as those with ectodermal dysplasias. How common is it? Does it…
Dry Mouth (Xerostomia) in Ectodermal Dysplasia
Ectodermal dysplasia can affect an individual’s salivary glands and cause dry mouth. In this article from Dr. Kay Motil, learn about the three different types of salivary glands and the important role that saliva plays in our health, eating and digestion. If you or your child have dry mouth because the salivary glands don’t produce…
Webinar: Skin, Hair and Nails in the Ectodermal Dysplasias
Learn about four of the five major symptoms of ectodermal dysplasias in this webinar with pediatric dermatologist, Dr. Alanna Bree. She presents in-depth information about how the sweat glands, skin, hair and nails can be affected and ways to manage or treat them. You will learn: About the Expert Alanna F. Bree, M.D. is a…
Breastfeeding Guide for Women Affected by Hypohidrotic Ectodermal Dysplasia
Women who have hypohidrotic ectodermal dysplasia (HED) or who are carriers of x-linked hypohidrotic ectodermal dysplasia (XLHED) can face challenges when they begin breastfeeding such as trouble producing milk. We recommend that you make a breastfeeding plan with your doctor or alactation specialist. Use this article to learn about how XLHED affects the breast and…
Hypohidrotic Ectodermal Dysplasia and Breastfeeding: A Resource for Care Providers
This article is written for health care providers and lactation specialists to help them understand the unique breastfeeding challenges a woman affected by hypohidrotic ectodermal dysplasia (HED) may experience. Because the effects of HED are not well known, care providers might assume the breastfeeding challenges a mom encounters are because the mom is or is…